Friday, August 27, 2010

Excuse me for getting emotional, but....

Complete outrage. That is all I can feel. Rarely do I put this much emotion out there for those other than close friends and family to see, but this just sent me over the edge and needed to be shared with my food allergic family.

As you know, school has started with Alexis entering the 4th grade and Ryan 1st. Although Alexis' situation is much more severe than Ryan's, the school staff, my husband and I seem to have set up a safety system that (thank God) is not only keeping Alexis safe but allowing her to learn and thrive like any other child. In addition, the other children at her grade level and above are extremely supportive, respectful and things almost seem pretty routine.

Ryan on the other hand is entering 1st grade and although has an amazing teacher (in fact Alexis had her for 3 consecutive years and is completely understanding and trained in our situation), this is the big world and he is a different kid. My "Ry Guy" is much more reserved and is extremely sensitive to chaos and uncertainty which of course comes with the first week of school - especially for the little kiddos.

Okay, get to the point.

Ryan, who has allergic reactions to eggs, tree nuts, peanuts, shell fish and mustard is only starting to show signs of anaphylaxis to dairy and his asthma is only illness induced. Therefore, his requirements at school do not warrant the level at which Alexis must be cared for. Nonetheless, Ryan does sit at the allergy safe table and because this is the first week and the staff is on a new schedule there has been some confusion among the little ones who can sit with him, and Ryan is too young to properly articulate his need for space.

My solution for now...I will have lunch with Ryan at school until the routine is set. In addition, the nurse, school psychologist and I thought it be best to make a laminated sign for the table with pictures (versus words) so those not able to read can understand this is a special table free from dairy, eggs and nuts. Great!

Well here it comes - while discussing this with the district nurse, I learned that a new child to our district with a peanut allergy entered a school where there were no other allergic children. The school set up a peanut free table and not only did that child sit alone but other children threw peanuts onto the "safe" table (not clear if the child was present at the time)! Unfortunately, the school does not know who did this so charges can not be filed but other parents of food allergic children learning of this event are refusing safe tables for fear of this type of reaction.

When are people going to learn - THIS IS NOT A LIFE STYLE CHOICE. Just as you did not chose to have brown hair or green eyes (for example), these children with life threatening food allergies did not ask for this and would give anything to not fear for their lives for your right to eat a peanut butter sandwich.

Children with this life threatening food allergies want to live normal lives. They have the right to go to school in a safe and healthy environment and although the violators of this offense where children themselves, tolerance is taught at home. Please, teach your children that a prank like this can be deadly. Teach them to reach out to the child and become their friend, not bully or tease them for something they have absolutely no control over.

Can you imagine what it is like to grow up fearful of food? Imagine sending your precious child off into that big bad world is also extremely painful but they have to learn to take care of themselves for their own sanity. To live in a world that is full of danger and fear and once again, tolerate the fact that pizza, ice cream and peanuts are not going away and they will not invite them to parties or ask to play just because they can't have a slice. Sad.

At least allow them to got to school without fear. Is that too much to ask?

Tuesday, August 24, 2010

Interview with About.com!

Below is the link to my interview with About.com. Thank you very much to author and blogger Terri Mauro for featuring myself and the Sweet Alexis Bakery this past week. This was truly an honor and we are so thrilled to part of her new series on special needs children.

http://specialchildren.about.com/od/shoppin1/p/Special-Needs-Business-Profile-Sweet-Alexis-Bakery.htm?r=facebook

In our case, we were featured for starting a bakery based on Alexis' severe food allergies. As Terri mentions in her article, starting the business was a way for us to give back to the food allergic community by making delicious baked goods made dairy free, egg free, tree nut and peanut free. Not only do we make safe and yummy allergy free food, but also advocate for the food allergic community by creating awareness through articles such as these.

In the Special Needs section of About.com, Terri also features other enterprising moms that also started a business based on their kids disability. These other parents are truly inspirational and the site is definitely worth your time to review. The site is also filled with great information and is a resource for many different conditions including autism, diabetes and much more.

Thank you again Terri for this amazing opportunity and helping to create awareness about the food allergic community.

Thursday, August 12, 2010

Thank you Oprah....

Rarely do I get a chance to come home and watch afternoon television, but yesterday after a day in the bakery I came home early and took a few minutes to relax and have a snack before heading off to cheer camp with Alexis. I snuck off to the the living room and turned on The Oprah Winfrey Show that was in the middle of discussing a new documentary, Food Inc. and Food 101 with Michael Pollan. I was hooked! Definitely and episode worth watching - http://www.oprah.com/oprahshow/The-Truth-About-Food-with-Michael-Pollan.
Basically, the show discussed where our food comes from, how they are processed and how it affects our bodies. As Ms. Winfrey recommended numerous times throughout the program, please review the information and make your own decision but at least consider what is being presented before you.
Both the documentary Food Inc., and Mr. Pollan discuss the manufacturing of food, preservatives and artificial fillers used in products to increase production, growth and shelf life. These manufacturing practices albeit cost effective, make foods that are genetically unrecognizable in comparison to our great grandparents food; chickens grow faster and fatter & food lasts on the shelf for months. At what physical and emotional costs?
The truth is American's are sick...food allergies on the rise, diabetes, autism, heart disease, asthma, obesity and more, all on the rise? Studies show that in countries that do not rely on the convenience of processed foods or genetically engenered farmed animals, are in fact much healthier. There must be a reason, although scientists have no definate answers, one can speculate.
Mr. Michael Pollen has written a book "Food Rules" discussing the use of anitbotics, fillers, preservatives and how low fat diet food can actually make you fat. In the book he suggests some simple rules to follow including not to eat anything your great grandmother wouldn't recognize, for example go-gurts, don't eat products that contain ingredients a fourth grader can not pronounce or to only eat food that eventually spoils - if it's a living thing it will die.
When Sweet Alexis Bakery was born I did consider using preservatives to sustain the product as schools and stores require a 6 month shelf life. Although it would have made my job much easier, it has always been my montra that "we do not know what is making our children sick" so I stuck to my guns and produced Sweet Alexis products without preservatives or fillers. Whenever possible we use organic ingredients, freshly locally grown produce and are proud to say a fourth grader can read our labels.
With the Oprah Winfrey Show coming to an end, the hopes of the Sweet Alexis Bakery appearing on the show to talk about our delicious and safe dairy, egg, tree nut and peanut free products, and more importantly, advocate for the millions of Americans with food allergies, is all but gone. However, we would like to thank Ms. Winfrey for yet another amazing and informative show.
How about the Ellen DeGeneres Show? Sweet Alexis Bakery products are vegan, too.........................