Wednesday, March 31, 2010

See Alexis on Medic Alert Homepage



Last year Alexis was profiled in the MedicAlert news letter regarding her allergies and how she wears the MedicAlert bracelet to keep her safe and secure. At the time they asked if they could continue to use her photo and story and we agreed in hopes her story would inspire others. Since then, MedicAlert has added Alexis among others to their home web page, www.medicalert.org. Very exciting and quite an honor!

If you have an allergy, illness or just want to feel safe please call MedicAlert today! They provide an amazing service and incredibly low prices. Alexis has been wearing her bracelet since she was two years old and has only taken it off when needed to be sized. She knows that if anything should happen to her, first responders need only to look at her bracelet, call the number and all of her medical and contact information is on file. This has not only given her confidence but has for us as well.

Thank you MedicAlert for including our story on your site and especially for providing such an amazing service that allows members like Alexis to live happy, normal, productive and wonderful lives.

Thursday, March 25, 2010

The Incident...

It's true, I'm not the most consistent blogger and it does take me some time to sit down and write about things, however, I do like to share as my experiences so thanks for sticking with me.

Last month Alexis had an emergency at school - luckily she's fine but it was rather scary and definitely eye-opening for the entire school staff.

Here's what happened. Alexis' third grade class was having a pancake breakfast that was to celebrate Washington/Presidents Day. Initially, the children would enter the cafeteria and experience making their own pancake, which would be followed later that day by a full blown pancake lunch including sausage and cherry crisp.

As usual, I brought Alexis' own pancake batter. She was the first to make her pancake and went off to drama where the children were allowed to eat the snack. Although the drama room door was open, the over powering smell of the other children eating pancakes with milk in them was enough for her histamines to react, although not seriously (she had her daily dose of anti-histamine medication prior to the event). This of course unknown to me.

After drama, Alexis went off to P.E. where she was to run three laps. Apparently, Alexis began to wheeze on lap two and by lap three was in need of her inhaler. Under watchful eye, Alexis walked back to her classroom. Thankfully her teacher was in the room at the time but they could not find her inhaler. A bit paniced, her teacher brought her to me in the cafeteria. I took one look and litteraly ran to the office. In fact, I don't even rememeber doing so. Upon entering, I yelled at the principal "She needs and inhaler, she needs an inhaler"...the nurse came from another room and promptly unlocked the medicine drawer where thankfully was another students inhaler was stored. The lack of oxygen to her brain was beginning to make her head heart and her lips began to swell. I gave her a double dose of Benedryl and instructed them to call 911. Why no epi pen...it wasn't with her, the bag was in the classroom.

Due to her history of delayed and secondary crashes, the paramedic started an I.V. tube just in case we needed to give medicine to her instantly. Thankfully, we did not have to administer epinephrine but of course would have if needed.

One challenging part that I am still dealing with is that I became upset in front of her. Normally in this type of situation I am calm...not this time, I was shaking and the tears were flowing.

The positive..she's alive and the emergency plan worked although we had errors. Learning from our mistakes we gathered the following Monday with the staff to discuss the event, what we could do better and must be done in the future. Here are the new and improved changes:

1) Prior, Alexis had a full set of medication in her room and a small bag with her lunch containing an epi pen and Benedryl. Now, there is a full set of medicine and inhaler in the following places: a) the office, b) in her lunch box, c) in the classroom.
2) This is the first year she has traveled outside her home room with out a medical bag (small campus, but still not good). Now, when going to different areas on campus, the classroom medical bag will again travel with her to the next destination and given to the adult in charge.
3) Apparently, Alexis had put the inhaler in her desk and forgotten that it was there. Now, she and the teacher are to check the medical bag each day to make sure all the necessary items are in place.
4) Previously we did not have a set of medicine in the office and now we do.
5) At no point is Alexis or any other child allowed to walk alone or go to the bathroom without a buddy. This insures should anything suddenly happen, there is someone available to get help.

After about 4 hours in E.R., Alexis was ready to go. I could tell she was feeling better because was giving the doctor greif about the I.V. in her arm. On the way home she was asking for a play date because she missed school. In fact, she had me call her classroom from E.R. to let them know she was okay.

What an amazing kid I have. I am blessed to have her and Ryan and blessed to be at such a great school where they are working hard so that children like ours can have a "safe" and "normal" education. Thankfully everything turned out fine and we were able to learn from our mistakes, not only for our family but for the food allergic community as well.

Thursday, February 18, 2010

Why We Must Remain Hyper-Vigilant

This past weekend, we decided to take a short trip North and camp in one of our favorite coastal towns, Cayucos. The kids were out of school, my in-laws were in town and the weather was amazing. Due to Alexis' severe allergies not only to food but the environment as well, we have trailer which allows us to not only have a safe kitchen but her own bedding as well. There was space available and although the town is literally 20 minutes up Highway 1, it's nice to get away.

Now like most families of children with life-threatening food allergies, we rarely eat out and when we do we are on constant guard. Because we were in a familiar town, we decided to treat ourselves to lunch at a local restaurant. Actually the night manager's daughter of this particular establishment is one of Alexis' best friends and the kids have eaten there previously under the managers strict supervision.

Knowing our friend, the manager, was not working we decided to bring our own hot dogs for the kids but order french fries as we had in the past. Upon our arrival I knew instantly the fries looked different. When I asked the hostess if the fries were new, she seemed claimed they were the same beer batter fries they always served.

Trusting my instincts, I went to the kitchen myself to ask the chef. He also claimed they were the same fries and there were safe for those with an egg or milk allergy. Explaining we were talking about a life-threatening reaction, I asked to see the ingredients. Product contains; wheat, milk.

Mom knows.

Fortunately, the chef was very nice and make the kids special fries with fresh potatoes. The kids were thrilled, I was a wreck and had medication on the table just in case. Fortunately all was well and we spent the rest of the afternoon collecting sea glass on the beach. Dad even found a real shark tooth!

Trust your instincts and beware of those beer batter fries!

Friday, February 12, 2010

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Tuesday, January 26, 2010

Go Diary Free!



One of our most favorite sites...www.godairyfree.org! Thank you for all of your support, we truly appreciate all that you do for the allergy community. Want to find out about all things dairy free, please check out this amazing site and fabulous book written by Alisa with delicious recipes and facts about living sans dairy. If you're in the area come by the shop, Alisa was gracious enough to send us a copy for you to review.

Saturday, January 23, 2010

Dairy, Egg, Tree nut & Peanut Free Cookie Perfect for Valentine's Day Decorating Parties!!!

Just in time for the food allergic community and Valentine's Day. The new Sweet Alexis Shortbread Cookie is Dairy, Egg, Tree nut, Peanut Free, incredibly delicious and ready for delivery!!!

Here's the story...ever since Alexis started school I've been struggling finding a good cookie that could be used for "cookie decorating parties". Baking the traditional "Roll Out" or "Cut" cookie was quite a challenging for me since I could not use egg as a binder. Over the years I've experimented but the cookies usually fell apart upon arrival and wouldn't you know it, I was always volunteering to supply the class "safe" cookies at all of the holiday parties so all the kids were eating the same cookie and Alexis did not feel left out. Weeks before the event I would begin to stress and then would procrastinate baking something at the last minute. I would usually make a double batch of whatever recipe I was trying to ensure some cookies would be good for the party. This cookie was my nemesis, to say the least.

Well, this past holiday season I tried a new recipe and with a few changes and tweaks I came up with a winner. Our national distributor Peanut Free Planet (www.peanutfreeplanet.com) asked me to have the cookie ready for the upcoming Valentine's holiday and a star was born! Now you too can purchase this cookie for your holiday cookie decorating parties. Believe me, no one is more thrilled than me about this delicious cookie.

A local baker friend of mine recently sampled the cookie and she was completely impressed. According to her, the texture was amazing and the taste outstanding. Thank you, Ms. O!

We call this cookie "Shortbread" because it's not too sweet, just enough do balance the sugar content of any decorative frosting. This cookie reminds of our late "GiGi's" famous shortbread, minus the dairy, eggs, tree nuts and peanuts. Every time I take a bite I'm reminded of her sweet face and contagious laugh. This cookie is dedicated to her.

The Sweet Alexis new Shortbread cookie come individually wrapped and can be stored in the freezer. You can also purchase larger quantities and sample packs at www.peanutfreeplanet.com. For all of my food allergic community and families, hopefully this cookie - a small token - causes less stress and many smiles. Enjoy!!!

Thursday, January 21, 2010

The Sweet Alexis Dad Dream Team!

Guardian Angel Motorsports (www.guardianangelmotorsports) mission statement:
"To harness the power of the motorsports industry to raise money for children's charities. " Dad's on a Mission, now working with FAAN the Food Allergy and Anaphylaxis Network to raise money and awareness for the food allergic community. Thank you for all that you do, the Sweet Alexis Family is now a fan. Congrats and good luck.

P.S. Alexis and Ryan's dad dream - drive and race a restored car built by himself and the kids to raise money and awareness for the food allergic community. Some day....